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Indi Gregory: Critically ill baby has life-support treatment withdrawn | UK News

Life-support treatment has been withdrawn from a critically ill baby girl who has been at the centre of a legal battle, a campaign organisation supporting her parents has said.

Eight-month-old Indi Gregory has been transferred from the Queen’s Medical Centre in Nottingham to a hospice, Christian Concern said on Sunday.

She stopped breathing on Saturday night but then recovered, the organisation said.

“She is fighting hard,” her father Dean Gregory is quoting as saying.

BEST QUALITY AVAILABLE Undated family handout photo issued by Christian Concern of Dean Gregory and Claire Staniforth with their daughter Indi Gregory, who has mitochondrial disease and is being treated at Queen's Medical Centre, Nottingham. Her parents, have lost legal fights in London and failed in a bid to take their case to the European Court of Human Rights (ECHR) in Strasbourg, France. Issue date: Friday October 27, 2023.
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Indi Gregory’s parents Claire Staniforth and Dean Gregory

Indi was born in February with a rare mitochondrial disease, a genetic condition that saps energy, and has been receiving life-sustaining treatment. Her doctors have said she suffers from significant pain and distress, and that treatment is futile.

Mr Gregory and Indi’s mother Claire Staniforth have fought to overturn multiple court rulings on their daughter’s treatment, but have not been successful.

It is understood Indi was transferred from the hospital in Nottingham to an ambulance with a police security escort.

She is said to have been relaxed and slept during the journey to the hospice.

Andrea Williams, chief executive of the Christian Legal Centre, said: “Dean and Claire are by the side of their precious daughter Indi, keeping watch over her. We ask for your prayers for them”.

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2 Nov: Indi Gregory’s dad says he ‘will fight till the end’

Pope Francis offers prayers

Baby Indi’s move to the hospice comes after the Court of Appeal dismissed a challenge from her parents on Friday to an earlier ruling that her life support should be removed in either a hospital or a hospice. Her parents had said she should be allowed to have treatment removed at home.

Mr Justice Peel concluded that “extubation and palliative care at the family home” would be “all but impossible”.

Her parents, who are from from Ilkeston, Derbyshire, have also failed in a bid to transfer Indi to a hospital in Rome where she had been offered treatment and Italian citizenship.

The judge ruled a move to Italy would not be in Indi’s best interests and Court of Appeal judges backed that decision.

The Vatican Press Office released a statement on Saturday saying Pope Francis is praying for the family.

“Pope Francis embraces the family of little Indi Gregory, her father, and her mother; prays for them and for her, and turns his thoughts to all the children around the world at this very hour are living in pain or risk their lives because of illness or war,” the statement said.

Archie Battersbee set to have treatment withdrawn on Monday after life support battle | UK News

Archie Battersbee, who is on life support, is set to have treatment withdrawn at 2pm on Monday unless the government complies with an injunction from the United Nations’ High Commissioner for Human Rights.

Barts Health NHS Trust, which is treating the 12-year-old, said in a letter to his parents that “no supplemental oxygen will be given” after the endotracheal tube of the mechanical ventilator is removed.

Archie has relied on the machine to breathe since being admitted to hospital on 7 April after being found unconscious at home by his mother.

“The time it takes for the heart to stop beating is often a matter of minutes, but in some cases, this can take longer,” the letter continued.

“A doctor will assess Archie regularly to confirm that the heart has stopped beating but with consideration of the family’s need not to have too much intrusion at such a difficult time.”

Archie’s parents Hollie Dance and Paul Battersbee will be told on Monday morning how the withdrawal process is to be performed, with the aim to “preserve Archie’s dignity”, the letter read.

It went on: “You or any of the family may wish to lie on Archie’s bed with him or have him in your arms, if that should be practically possible.”

More on Archie Battersbee

A High Court judge had ruled that ending treatment is in Archie’s best interests, after reviewing evidence from clinicians and said the boy’s prognosis was “bleak”.

The family says doctors should give Archie a chance to recover and have made an application to the UN Committee on the Rights of Persons with Disabilities, citing Articles 10 and 12 of the Convention (UNCRPD) which call on nations to ensure the right to life and equal rights for disabled people.

In a letter to Ms Dance and her barrister Mr Bruno Quintavalle, the committee writes it has “requested the state party [the UK] to refrain from withdrawing life-preserving medical treatment, including medical ventilation and artificial nutrition and hydration from the alleged victim while the case is under consideration by the committee”.

Read more:
Archie Battersbee’s mother appeals for help from health secretary
Supreme Court refuses to intervene in life-support battle for brain-damaged boy

Archie's parents Paul Battersbee and Hollie Dance
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Archie’s parents Paul Battersbee and Hollie Dance

On Saturday the government told Sky News it has received correspondence from the UN which it is carefully considering.

A Department of Health and Social Care spokesperson said: “We recognise this is an exceptionally difficult time for Archie Battersbee’s family and our thoughts are with them.

“We have received the letter and will respond in due course.”

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Archie’s mother makes plea

Ms Dance told Sky News she is waiting anxiously for the British government to comply with the UN request.

Barts Health NHS Trust said delaying the start of palliative care would “not be appropriate without an order of the court.”

The family said the assertions were misleading, adding: “We as a family are very disappointed that the Trust’s management has chosen to hide behind euphemisms and to mislead the public.

“It is hard to see any reason for that behaviour except knowing that what they are doing is cruel and wrong.”